Friday, September 5, 2008

HBOT is going great!

We are nearing the end of Sam's first month of Hyperbaric Oxygen Therapy and things are going great! He now LOVES to get in the "space ship" with dad. He watches a movie, plays PSP or Leapster, or usually all 3 at the same time! He runs downstairs, throws his gummy bears and games in and climbs in to wait for dad. What a difference from the first few times we had to grab him and zip him in.
So far, no miraculous changes, although speech therapy is reporting improvements and, aside from a few random screaming fits, his behavior has been on the positive side.
BM is still an issue but he's going about once a week which, believe it or not, is an improvement.
We will be keeping the unit for another month with the help of the UHC Grant we received, which will reimburse us for the speech therapy we've already paid for out of pocket, to help cover the HBOT.
I started a fundraising Cafe Press Shop for Sam and hope everyone gets a chance to visit and forward it to friends and family. The link is to the right of the front page of the blog. Every little bit helps!
Did have a couple of unpleasant experiences with his new liquid vitamins, Super NuThera. We've been putting it in a syringe to be sure he takes it, and we aren't wasting it by adding it to his juices that he won't drink. Problem is, it tastes awful and he really doesn't take it easily. The first time, he let it dribble out of his mouth onto the carpet in the dining room. The second time, we wrestled until I had squirted it all over him, myself, the ottoman, and the carpet in the family room. Did you know nothing takes out Super NuThera? In fact, oxy powder, hydrogen peroxide, and carpet cleaner all make it even brighter yellow than it was to begin with. Aside from bleach, I'm out of options! Even the company we buy it from had no better ideas than that. Guess I'll be getting that nice wood flooring I've been begging for.
Talk to ya'll soon!

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